suffer with heavy urge incontinence and bowel problems since I was a child I have cut down on my caffeine I’m on medication and under the hospital I wear Nappies 24/7 as i can’t make to the toilet, my next stage Is properly have a botox injection to relax the bladder my fear is if its too relaxed I might it have to use a catheter for bit if the botox don’t work then I might have to use a catheter for a long term . I have autism living independently but I have support and I have a carer see me and takes me out when I not up to driving I suffer a great deal of anxiety and get anxious, headaches a asistigmasism a lot so wear glasses permanently and I get very overwhelmed and emotional when me and my carer are in busy places he makes sure that I need the bathroom disabled toilet as I sometimes need help or reminding of my personal hygiene like not washing problem especially if I had accident in my nappy on my bad day as I have them a lot. On the whole I try keep busy I do drive but I have to plan my journeys especially if I plan a long journey as I get very anxious my bladder will implode its goes on my car seat I don’t want it ,as im scared people will think different reason I wear Nappies, Is to avoid embrassment like if staying night at friend or family or a hotel adlest I feel secure and safe without being questioned, i know its sounds bulky making me feel I’m lazy i do my absolute best to get to the toilet when I can and when im out in a town public toilets are shut I have to ask a pub or cafe to use disabled toilet for that reason, i have im too scared ask and with the bladder or bowel urge warning I got then its too late when I out with my carer in his car he puts a cover on front seat for me when he takes me out. I try ad’and do things for myself but it can be a struggle I don’t give up, So my question is this is it silly for me to wear Nappies? as it might have to permanent.
Hi Jason, that’s must be so hard for you going threw all the problems you have me , but as you say we plan ahead and get prepared. I do get things prepared nappies and medication etc we carry on doing are best and try not to worry, until I have accident then making sure I got my rader key for disabled to change my nappy. Thing that annoys me I been out ready for disabled toilet in a busy pub, drunk customer goes why you not using normal toilet!! I’m like non of your business he kept pestering me then I felt I had to felt forced to tell I wear nappies and he shut up after and he was so drunk and I shouldn’t have to them personal business EVER!,it’s so private to us we don’t need the stress on top. All the best for you mate I think be using Catheters soon and as well as nappies.