Hi I was diagnosed with bowel in continence 3 years ago after a lay open fistulotomy which was carried out privately in Spain. I moved back shortly after as I could no longer do my job working with food. I moved back to the uk and approached my gp and he made a few notes on the computer and that was that. After a year it became clear I wasnt getting to see a consultant here to see if any help can be given. So I managed to get an appointment through self referral to the continence team but it was a 8 month wait. I was examined there and asked questions like do you wher pads or in continence pants and I answered with I have no money , no income, no job and unlikely to get one with my problem ( going out for an appointment means 3 days no food to allow me To be less at risk of bowels opening while I am out. I have no social life and am housebound 90% of the time as I only leave if I have to and that causes so much stress and anger) I have finally got an appointment next month.has anyone else got similar and what has been done to help you? I am 47 and just feel my life is over ….
Thank you for posting on here. Sorry to hear you’re experiencing this. You are not alone in having this, as more people than you’d think suffer from faecal incontinence…it is just barely spoken of!! That’s great that you’ve managed to get an appointment. I would ask them about potential methods of surgery you could have and if there are any lifestyle changes that could help.
You can find support on this website from our faecal incontinence section and this forum.
Has anyone else experienced incontinence after a fistulotomy? It would be useful to hear other people’s experiences with this.
Hi, I don’t know if this is suitable for you for you or not..but have you considered getting a colostomy? I had one after suffering from long term problems with my bowel due to illness and it changed my life. It basically creates an artificial stoma opening..so leaks are collected in a small pouch.
Hi, I can relate to your feelings of stress for having an accident in public. I’m 30 years old and have been struggling with faecal incontinence for the last 7-8 years. I have a bad case of ibs in addition to a muscle damagage. For me a food diary and cutting specific food has helped a bit. But for long travels and at night diapers is the only solution. I use abena or molicare premium slip at night, and tena super slip on travels or when my ibs is very bad. Not loving this, but it makes everyday life a bit easier. Best of luck to you!
Hi sorry you’re suffering.
I know how you are feeling. I am incontinent from both ends. Bladder cancer left me incontinent at one end and bile salt malabsorption left me with bowel incontinence at the other. I sometimes soil myself without any warning at any time, whilst I can’t offer any serious advice my best wishes go with you