Hi I was diagnosed with bowel in continence 3 years ago after a lay open fistulotomy which was carried out privately in Spain. I moved back shortly after as I could no longer do my job working with food. I moved back to the uk and approached my gp and he made a few notes on the computer and that was that. After a year it became clear I wasnt getting to see a consultant here to see if any help can be given. So I managed to get an appointment through self referral to the continence team but it was a 8 month wait. I was examined there and asked questions like do you wher pads or in continence pants and I answered with I have no money , no income, no job and unlikely to get one with my problem ( going out for an appointment means 3 days no food to allow me To be less at risk of bowels opening while I am out. I have no social life and am housebound 90% of the time as I only leave if I have to and that causes so much stress and anger) I have finally got an appointment next month.has anyone else got similar and what has been done to help you? I am 47 and just feel my life is over ….
Thank you for posting on here. Sorry to hear you’re experiencing this. You are not alone in having this, as more people than you’d think suffer from faecal incontinence…it is just barely spoken of!! That’s great that you’ve managed to get an appointment. I would ask them about potential methods of surgery you could have and if there are any lifestyle changes that could help.
You can find support on this website from our faecal incontinence section and this forum.
Has anyone else experienced incontinence after a fistulotomy? It would be useful to hear other people’s experiences with this.